Snow, Ice, & Frigid Winds Heap New Challenges on Caregivers

The perils and discomfort of winter weather are fodder for the nightly news, but they present a whole different issue for caregivers of individuals with dementia. The caregiver’s task of having to come up with activities to fill the day now becomes one of limiting activities to those done indoors. An often resultant malady called cabin fever, courtesy of snow and ice, can make the day feel endless.

The Alzheimer’s Association has a few tips to help caregivers weather the storms:

1. When planning activities, think about how the person for whom you are caring historically enjoyed spending his or her time.
2. Adjust these activities so they are doable and safe, while also meaningful for the person with dementia and caregiver alike.
3. It is important not to infantilize the person by asking  them to do activities which may be below their current level of functioning.
4. When engaging in an activity, minimize distractions. Turn off the television and your cell phone.
5. Be present with the person during the activity. Give  the person you’re caring for your undivided attention, which will feel good for you both.

The Internet, of course, provides innumerable suggestions for indoor activity, but I just found a site, Elder One Stop, that offers ideas that go beyond “the usual.” Check it out at http://www.elder-one-stop.com/dementia-activities.html.

Posted by Patty Hagen, Director of Memory Care Programs, Charles E. Smith Life Communities

Caregiver Tips for Special Family Events Throughout the Year

With just a few weeks left to the 2013 holiday season, there may be a few more special occasions for families who have a loved one living with dementia to gather together. We’ve discovered a list of tips from the Alzheimer’s Association to make these occasions successful and happy, but since they are as relevant to any family celebration at any point in the year as they are to traditional year-end events, we felt it would be worthwhile to share with readers.

1. Adjust your expectations of yourself, the caregiver. Only agree to take on what you can reasonably manage, and ask for help. Holidays, birthdays, and anniversaries often come with traditions and expectations from family members, but try to ask for people to be flexible. Perhaps you can ask someone else to host the holiday gathering this year.
2. Let family and friends know what to expect. If they haven’t seen the person with dementia in a few months or a year, make sure they know.
3. If a family gathering is large, assign a friend or relative (or two) to be a “buddy” to the person with dementia. The buddies can take turns guiding the person with dementia through what is expected at the gathering and making sure the person with dementia’s needs are being met.
4. Involve the person with the diagnosis in tasks that they can succeed in. Maybe he or she can no longer prepare the entire meal, but perhaps the person can rinse the vegetables, set the table or clean silverware and still feel included in the preparation.
5. Try to schedule only one activity or outing a day. Allow the person to rest either before or after the event. If you have an especially busy day, plan for the next day to be one of rest and relaxation for both the person with dementia and you.
6. Take time for yourself. If you have a holiday tradition that is important to you, such as attending a musical performance with your grandchildren, arrange for home care so you can continue to enjoy the things you love.

Visit the Alzheimer Association website for a fuller list of holiday season tips as well as tips for winter and spring enjoyment.

Your Second Caregiver Responsibility: Take Care of Yourself!

As director of memory care programs at Charles E. Smith Life Communities, I assist in developing stimulating programming for residents living with memory care issues. Recently, I was chatting with the family member of one of these residents and suddenly refocused the conversation to the gentleman’s own wellbeing by asking, “So what are you doing for yourself today?”

He scratched his head and had difficulty coming up with a quick answer. Why? Well, he had never considered himself in the equation of care. Finally he replied that he was not coming back that evening and in fact had just decided to decrease his visits to mornings only.

We started to discuss his typical day. Every morning and afternoon he attends synagogue services. He then tries to arrive at our residence around 9 a.m. to be with his wife; he stays to have lunch with her and finally leaves around 1 p.m. Back at his home, he attends to personal affairs. That’s it. As far as doing anything for himself that might be fun, interesting, stimulating, or nourishing to body and soul—all in an effort to relieve stress and prevent caregiver burnout, he has nothing on the schedule.

If this describes your life as a caregiver, there’s abundant practical advice out there to help you help yourself. To start the ball rolling, go to the Mayo Clinic website to read “Caregiver stress: Tips for taking care of yourself.” http://www.mayoclinic.com/health/caregiver-stress/MY01231.

Spring Fever

Regardless of the time of year, it can be a challenge to come up with meaningful activities to do with a person living with dementia. Now that spring has arrived (and summer is around the corner), it’s a great time to explore the outdoors and take advantage of the warmer weather.

When choosing activities, try to identify things the person you are caring for has historically enjoyed, while focusing on his or her abilities and modifying the activity based on their stage of disease. Here are some random tips:

1. Work in the garden together. Sometimes just repotting plants is easy and fun to do.
2. Grab an ice cream cone as a cooling treat.
3. Toss a ball in the yard or park to get some outdoor exercise.
4. Play with pets or visit a zoo.
5. Take a trip to a botanical garden.
6. String Cheerios to hang outside for birds.
7. Have an afternoon tea party outside.
8. Feed the ducks. 

By the way, just because it’s spring doesn’t mean you have to go outside. Simple Indoor activities can be worthwhile too. Consider these ideas:

1. Do some spring cleaning together.
2. Dance!
3. Make homemade lemonade.
4. Look at family photographs.
5. Make a scrapbook.
6. Work on a puzzle together.

Finally, it may be helpful to have activities ready in different rooms of the home so you always have engaging ways to spend time together right at your fingertips.

If your loved one happens to live in a memory care residence, ask staff about their activity schedule so you can arrange your time to visit when something that interests you is happening.

When a Garden is More Than a Garden

  I just had a great conversation with residents at Cohen-Rosen House about the approach of spring and upcoming plans for our garden.

“What should we grow in our garden?” I asked. “What did you grow in your garden?  Fruits, vegetables, herbs?” I explained that everything we grow here can be used in the Cohen-Rosen kitchen and this was greeted with surprise and delight.

The conversation moved on to tomatoes. “Are they a vegetable or fruit?  And what about eggplants: vegetable or fruit?”

This is an encouraging example of how interest and anticipation can arise from a simple discussion of a life-long pleasure.

Caregivers might enjoy reading “Gardens for People with Dementia” at http://bit.ly/Zm7c6a.

The Beauty of Art…as Therapy

   A fascinating article titled Art Therapy Innovation, written by art therapist Erin Partridge, supports what I regularly witness in my work: “Living with dementia does not mean an end to expression and innovation.” Partridge describes a creative project that should be a solid dose of inspiration for anyone – professionals and family members alike – who provides daily care for individuals experiencing cognitive decline. I plan to share this with my own recreation specialists. Check it out at http://bit.ly/12XFP9l.